The whole time I was pregnant, my goal was to get Nora past 25 weeks (viability) and out of my womb to safety. Thankfully, we got even further than that and we are so relieved that she is here with us. I never really thought past that point for some reason, so the past few […]
As tomorrow’s MCA scan draws closer we struggle to stay hopeful. We are overwhelmed, honestly, wrestling with the possibilities of what the future holds. I am trying my best not to assume this baby’s story will be like Lucy’s, but there are so many similarities it is almost eerie. The waiting and doing nothing and […]
Today Nora is two weeks old. Last week she had her first check up at the pediatric hematologist. Her numbers looked good but she is heading toward being anemic. Her bilirubin was great, less than 1. It looks like she won’t be dealing with jaundice at all, which is a huge blessing. I was expecting […]
We brought our beautiful healthy boy home from the NICU a few days ago and it has been an amazing, exhausting whirlwind ever since. Callum’s doctor did a couple more x-rays and lots of blood work after his bloody diaper and all of it came back clear so she was able to rule out the […]
“Mommy, do you want to die in an explosion so you can go to heaven and see Lucy?” Five year old Asher caught me completely off guard with his question. I wasn’t sure if I wanted to laugh or cry but his face was earnest and he really wanted to know. I told him I didn’t […]
On July 19th our beautiful Nora Juliet turned two years old! Her birthday will always feel miraculous and holy because it is the day God fulfilled so many promises He made to me when I was at my most broken place. It was the day that I did the “impossible”….I gave birth to a healthy, […]
Our baby boy is still holding steady and doing well. At 17 weeks his MoM was 1.08. Yesterday at 18 weeks his highest MoM was 1.2 and there were no signs of extra fluid, dilated heart or echogenic bowels (possible signs of anemia.) He is growing beautifully and now weighs 9 ounces. He consistently has […]
Many of you have been wondering how we are doing after being devastated by Kailee and Peter and their cruelty. Obviously, we are sad, we are trying to adjust to not having “Scarlet” in our family like we thought we would. We are deeply hurt by what Kailee and Peter did to us and we […]
Nora’s last IUT was a success! Thank you all for praying for us. Dr. Moise proved once again that he really is the expert when it comes to these types of pregnancies. He knew Nora could make it four weeks between transfusions and wasn’t concerned that her MCA scan was very high (2) yesterday. I […]
Today our baby Callum is two weeks old and he is doing well in the NICU here in Atlanta. My mom and Nora and I have been staying at the Ronald McDonald House half a mile from the hospital and they have been amazing. I really don’t know what we would do without the RMH. […]
Today I am 34 weeks and 2 days pregnant. Last week Nora looked happy and healthy on her weekly biophysical profile ultrasound and non-stress test. The technician didn’t measure Nora but the doctor measured my belly and it was the size of a 36 week belly instead of 33 weeks. Here are a few pictures […]
Sometime in the next month or so our lovely baby “S” will be born. Our bags are pretty much packed, her hospital bag is ready, all of her clothes and blankets are washed and ready, we have everything we need for our new baby girl. I have done this before with Liam and Asher, waiting […]
Anti-Kell antibodies, along with the other red cell antibodies during pregnancy, can be very confusing and scary, especially when you are newly diagnosed and trying to figure out what is going on. Since the disorder is very rare, medical professionals don’t encounter it often and sometimes have to rely on their memory of what they […]
* If you are dealing with anti-Kell antibodies and are searching for information, don’t be scared or discouraged by my story. Your baby will probably be fine as long as you educate yourself and make sure you and your baby get the correct treatment. Make sure to check the bottom of the page for the […]