Two Down, Two To Go | Losing Lucy and Finding Hope

Our baby boy just had his second IUT this week in Atlanta and we are so thankful that everything went smoothly. With this IUT Dr Trevett made sure to give me an IV sedative and pain killer before the IUT, which really helped calm my nerves and dull the pain of the needles during the procedure. I was still clear headed enough to understand what was going on though, so I liked that. Once again, baby boy was in a bad position for the IUT so Dr Trevett had to stick him in the thigh to paralyze and sedate him before doing the transfusion. His beginning hematocrit was about 26 and ending hematocrit was 43. This time baby didn’t have any weird heart arrhythmias and he seemed calmer during the IUT. After putting the blood into baby’s umbilical vein Dr Trevett went in a second time to do an IPT (put reserve blood into baby’s belly.) Unfortunately, the baby was lying on his side and there was only a tiny space where Dr Trevett could insert the needle without puncturing his liver or kidney, so he decided not to even try it. It wasn’t worth the risk (and I’m glad he didn’t try it.) Since the baby doesn’t have any reserve blood in his belly to absorb over the next couple of weeks, we will have to do the next IUT in two weeks instead of three weeks like we had hoped. So, our next transfusion will be on Monday, August 28th when I’m a little over 32 weeks pregnant. Hopefully the IPT will work next time so that we can go three weeks and then have the last IUT at 35 weeks and deliver at 37-38 weeks. That would be a dream come true! 

The same day I had the IUT I also had my port removed (which made for a really long day!) and I now have no port/permacath for the first time in five months. I feel so free! It’s also wonderful not to have the weekly eight hour IVIG infusions. 

Thank you all for praying for us and following our story. I haven’t been able to blog as much as I would like because our computer recently died (it was the first time we bought a computer that wasn’t a MAC and we have learned our lesson.) We can’t afford a new computer at the moment so I’m writing this post on my phone. I will try my best to update everyone as we get closer and closer to meeting our son.