I have had this blog post mostly written and sitting in my draft folder for months now, waiting to be published. It weighs on me and I think about it often, rewriting certain sentences in my mind, adding and editing mentally while I go about my tasks during the day. Mostly, I want the whole […]
Today our beautiful Nora is three years old. Usually as my kids grow from baby to big kid I grieve the swift passing of childhood, but after our experience of losing Lucy and fighting for Nora and Callum I feel differently as my kids grow. I savor it all like never before and the baby […]
It has been a while since I’ve updated the blog! Usually I am faced with the choice to either neglect the blog post I want to write, or neglect my kids and of course, my kids will always win in that situation. But I do desperately want to keep blogging. I still have so much […]
Today our beautiful Nora is three years old. Usually as my kids grow from baby to big kid I grieve the swift passing of childhood, but after our experience of losing Lucy and fighting for Nora and Callum I feel differently as my kids grow. I savor it all like never before and the baby […]
I know most of you won’t be very interested in this, but I thought it might be good for me to post a link to Dr. Moise’s study on plasmapheresis and IVIG. Dr. Kenneth Moise is the maternal fetal medicine specialist who will be treating me in Houston, Texas. I have been doing plasmapheresis and […]
Transfusion number four is done and now we only have one left before our Nora girl arrives! The procedure went very well and was the easiest one yet. Nora was in a great position for the procedure and tolerated the needles and extra blood well. She still isn’t making her own red blood cells (which […]
I am now 31 weeks pregnant and still in disbelief. At least once a day I have a surreal moment where I see myself in the mirror or I see “31 weeks 1 day” at the top of the ultrasound picture or I realize that it’s JUNE and I’m still pregnant and I catch my […]
God has completely shocked us and blessed us beyond belief and it couldn’t have come at a better time. We desperately needed something encouraging to happen to us after losing Lucy, Jude, Pax and “Scarlet” in less than two years. I was steeling myself for yet another difficult Thanksgiving and Christmas without a baby in […]
* A quick apology- I’m in pain and tired so I’m not proofreading this, just throwing it out there as fast as I can type it. Sorry for any mistakes. The past couple of days did not go at all like I had planned them to go in my head. Yesterday was my 10 week […]
Ultrasound pictures are hard for me to look at, even of my own babies. It was on an ultrasound that we first discovered that Lucy was anemic and that my antibodies were attacking her. It was on an ultrasound that we watched Lucy’s heart stop beating. All of Liam and Asher’s ultrasound pictures are stored […]
This week I am 36 weeks pregnant and on Monday we scheduled my induction. It’s so exciting to finally have a date to look forward to! I am scheduled to be induced on the morning of Monday, July 20th when I am 38 weeks exactly. Of course, if there are no beds available and they […]
This is a heavy post. My grandfather is dying right now. He is 93 years old and he’s in a hospital bed in my old bedroom in my parents’ house down the street. We have been keeping vigil by his bedside for the past four or five days, never leaving him alone for more than […]
Our Nora Juliet is two months old today! Every day I get with her feels surreal. I still can’t believe she is here, in the flesh, healing our hearts and reminding us every day of God’s love and redemption. Her first pair of real shoes Nora smiles all the time and has almost doubled […]
So, last week Nora was on the verge of needing a blood transfusion and the doctor wanted to wait eight days before checking her again. We ended up calling the hematologist and telling him our concerns about waiting so long. He wasn’t defensive or condescending like some doctors in the past have been when questioned. […]